Mr. & Mrs. Odone 1234 Matt-I street Anytown, State ZIP 123-456-7890 [email protected] com June 30, 2012 The Doctors & Medical Professionals Studying ALD Dear Doctors, Our son Lorenzo has a degenerative genetic disease called Adrenoleukodystrophy. This heartless disease is result of having a female parent that is a carrier. The symptoms go from tantrum fits, to losing physical and cognitive abilities to, eventually death.
This is all due to the build up of long chained fatty acids building up on the yelin in the brain caused by the disease. Our son has been on a trans fat free diet for six months now. Not only have we not seen an improvement in his levels of long chain fatty acids, we have seen an increase of them. All of our doctors will not act on this issue. His condition is not improving. We decided to take matters into our own hands and researched everything from the disease itself, to the basis of how fatty acids are broken down in the body.
We found that the reason that the diet is not orking is because the absence of all saturated fats provokes the body to make even more of the long chain fatty acids. We have came up with a formula of simple, edible oils that have effectively made the levels of very long chain fatty acids (VLCFAs) decrease greatly, and over time the levels dropped down to normal. The oils are derived from olive oil and rapeseed oil. The reason it is successful, is because of the oleic acid and erucic acid in the oils.
These oils completely stop the enzyme that makes VLCFAs. We have much hope in this oil, in which we have called Lorenzo’s oil. Lorenzo has been on this treatment and it has worked. We have hope that you will review this information and start a trial on Lorenzo’s oil immediately. This could be the lifesaving liquid for boys suffering with ALD. We need to get this out to the doctors and parents alike. Thank you. Sincerely yours, Augusto & Michaela Odone Lorenzo’s oil parent letter By Songofstorms